Melissa Grafe's blog

Our first 2018-19 Ferenc Gyorgyey fellow, Jaipreet Virdi, Ph.D., shares an aspect of her research on disability technology through photographs and postcards, with little help from Twitter… Picturing Disability Technology Written by Jaipreet Virdi* In a 2014 article, historian Katherine Ott expressed: “Both the artifacts owned and used by people with disabilities and those that are used upon them or that are encountered in life create possibilities, impose limits, assert political and ideological positions, and shape identity.”[1] This statement has guided my research on the material culture of disability and the nature of disability as both an individual experience and a collective one. By examining how disabled people created, modified, and used technologies, tools, and machines as a medium of social interaction, my work aims to conceptualize how such objects shaped the meanings and management of disability – to understand, as Toby Siebers has written, the ways in which objects are “viewed not as potential sources of pain but as marvelous examples of the plasticity of the human form or as devices of empowerment.”[2] My research also examines representations of disability technologies: how did disabled people ascribe meanings and values to their objects? Wheelchairs, canes, walkers, braces, spectacles, hearing aids, prosthetics, and etc., all color various interactions with disability. Since most of these technologies are essential for navigating (sometimes literally) the world, visual representations of disabled people with these technologies provides us with valuable insight for understanding people’s lived experiences of disability. In photographs, for instance, everything from poses, dress, props, and the inclusion of disability technology, are visual evidence of conscious decisions to frame an image of disability. Such images enable us to perceive the kinds of technologies people used, how they adapted them to their bodies, and how they personalized them to reduce the stigma of “otherness”[3] or “freakery.”[4] The Robert Bogdan Disability History Collection at the Medical Historical Library (in the Harvey Cushing/John Hay Whitney Medical Library at Yale University) contains over 3,500 photographs and ephemera representing disability. Since the 1980s, Bogdan had collected such representations, ranging from the 1870s-when photographic images became popularized—to the 1970s at the heights of the disability rights movement. Bogdan’s 2012 collaborative book with Martin Elks and James A. Knoll, Picturing Disability: Beggar, Freak, Citizen, and Other Photographic Rhetoric (Syracuse University Press), provides a broader historical context of the collection, including a history of different types of citizen portraits. The carte de visite was the most common photographic format from 1860 to 1885, with each photograph printed from a negative and mounted on a piece of thin cardboard; some people chose to have the photograph on a postcard, so as to send messages to family and friends. Cabinet cards were also popular at the end of the nineteenth century, though they were three times larger than the carte de visite. Citizen portraits were often taken at a local studio, positioning subjects to “echo family visual rhetoric, not disability conventions”—there is no obvious attempt to conceal the disability, for it is part of the family reality as conveyed in the photograph.[5] Other photographs also use props and positioning of people to convey “normal life” within an inconsequential setting to frame an image’s ordinariness, instead of using disability to define the situation.[6] Disability technologies and other visual indicators of disability are prominently present in many of these photographs. As Bogdan points out, “their presence is not so intrusive as to change this picture’s place in the category of atypical family photograph.”[7] In this wedding portrait, for instance, the two women in wheelchairs are part of the wedding party and positioned to provide balance—the same way a photographer will arrange individuals according to height to obtain symmetry in portraits—without drawing much attention to their wheelchairs.   Wedding party with 2 women in wheelchairs, from the Robert Bogdan Disability Collection MS Col 61, Book 1: Wheelchairs.   These photos also do not tend to specifically feature the disability object, rather positioning the people within normal portraiture conventions, whether it is to show romance or familial ties. The use of additional props, moreover, were used to further confine the photographs within portraiture traditions – the disability technology, though consciously included in the photos, are not the subject of the portrait. Rather, it is the people and their relationships with each other. As Bogdan asserts, “Although some of the images were shared, even sent through the mail, they were distributed privately to intimates, family members, and friends. They were not produced for commercial public relations, to solicit money, to sell, or for personal or organizational gain.”[8] Through these images, we can see most assuredly that people with disabilities were “too busy living to be restrained by our post-structuralist worries over the cultural contingencies of what they did or who they were,” as Ott has remarked.[9]   Assorted photographs of women in wheelchairs accompanied by other people, from the Robert Bogdan Disability Collection MS Col 61, Book 1: Wheelchairs. Assorted photographs of women in wheelchairs accompanied by other people, from the Robert Bogdan Disability Collection MS Col 61, Book 1: Wheelchairs.   Assorted photographs of women in wheelchairs accompanied by other people, from the Robert Bogdan Disability Collection MS Col 61, Book 1: Wheelchairs.   One series of photographs piqued my interest: of individuals outdoors in wheelchairs that have chains attached to the wheels. This design feature appears in different styles of wheelchairs, but I have never previously encountered it in my research, either in manuscripts and archives, or in material culture collections. Inspecting the photographs, I took an educated guess: would these be for raising or hoisting the individual from the chair? My guess didn’t seem right to me, so I took my question to twitter.     As historians have discussed, crowdsourcing on social media is useful for harnessing participatory knowledge. It blurs the boundaries between specialist and non-specialist knowledge, offering new insights for working with primary sources. What seemed to me to be a questionable, confusing design feature was quite obvious to others – the wheelchair is a hand-crank, with the chains fixed to move the wheels the same way that a bicycle pedal moves a bicycle. Now, since I don’t own or ride a bicycle, chain gears were not something I was familiar with, but others have shared their knowledge to enable me to paint a better picture of how this design feature was useful for wheelchair users. The exchange on twitter formed a conversation about self-propelled wheelchairs that governed my research through the Bogdan collection and the broader history of the wheelchair. Litters, swings, cradles, carts, carrying-chairs or sedan chairs were used prior to the formation of the wheelchair as we know it, and individual chairs were not mass-produced until the mid-twentieth century to assist the increasing numbers of soldiers surviving from spinal cord injuries. Wheelchairs became associated with disability and thus, users were stigmatized and perceived as unable to contribute to society. These photographs, however, reveal the extent to which disabled people governed their own lives and sought to be self-sufficient, even taking an action pose in their studio portraits to represent their maneuverability. Man in wheelchair formed like a cart, from the Robert Bogdan Disability Collection MS Col 61, Book 1: Wheelchairs.   As Penny Wolfson has shown, users relied on their own craftsmanship or that of others to shape a mobility device for their own needs.[10] Wheelchairs could be made by adding cart wheels on dining or library chairs, by repurposing motorcycle engines, or adding gears for hand-cranked wheelchairs. While most nineteenth-century wheelchairs were manufactured by furniture makers prizing comfort, adaptability, and mobility, some users repurposed from household furniture and included crafted additions for comfort: home-sewn cushions, crocheted blankets or feet mats, and trinkets attached to spokes. These features provide us with clues into the personalized relationship between user and technology, presenting experiences of disability that were not always negative or exclusive. Moreover, photographs of disabled wheelchair users in various settings—in a field, in the streets, on the porch—indicates the challenges of maneuvering within the built environment, especially of navigating on unpaved streets. The wheels, cranks, and other design features that are visible in the photographs additionally reveal variants of disability experience. By the 1970s, wheelchairs became markers of disability as well as symbols of activism, leaving behind intimate traces of their owner(s). And those hand cranks aren’t simply designs of the past; old designs can always be made new again.   *Jaipreet Virdi is a historian of medicine, technology, and disability. She is an Assistant Professor in the Department of History at the University of Delaware. Her first book, Hearing Happiness: Fakes, Frauds, and Fads in Deafness Cures will be published by The University of Chicago Press. The Ferenc Gyorgyey Research Travel Grant generously supported this research; special thanks to the grant selection committee and to Melissa Grafe. Photograph images from the Robert Bogdan Disability Collection MS Col 61, Book 1: Wheelchairs. You can find Jai on twitter as @jaivirdi.   [1] Katherine Ott, “Disability Things: Material Culture and American Disability History, 1700-2010,” in Susah Burch and Michael Rembis (Eds.), Disability Histories (Chicago: University of Illinois Press, 2014), 119. [2] Toby Siebers, “Disability in Theory: From Social Constructionism to the New Realism of the Body,” in Lennard Davis (ed), The Disability Studies Reader (New York & London: Routledge, 2006), 177. [3] Catherine Kudlick, “Disability History: Why We Need Another ‘Other,” The American Historical Review 108.3 (June 2003): 768-793. [4] Rosemarie Garland-Thomson, Extraordinary Bodies: Figuring Physical Disability in American Culture and Literature (New York: Columbia University Press, 1997). [5] Robert Bogdan, Martin Elks and James A. Knoll, Picturing Disability: Beggar, Freak, Citizen, and Other Photographic Rhetoric (Syracuse University Press, 2012), 145. [6] Bogdan, Elks, and Knoll, Picturing Disability, 146. [7] Bogdan, Elks, and Knoll, Picturing Disability, 154. [8] Bogdan, Elks, and Knoll, Picturing Disability, 145. [9] Katherine Ott, “The Sum of its Parts: An Introduction to Modern Histories of Prosthetics,” in Katherine Ott, David Serlin, and Stephen Mihm (eds.), Artificial Parts, Practical Lives: Modern Histories of Prosthetics (New York: New York University Press, 2002), 1-42; 3. [10] Penny Lynne Wolfson, “Enwheeled: Two Centuries of Wheelchair Design, from Furniture to Film,” MA Thesis, Cooper-Hewit, National Design Museum, Smithsonian Institution and Parsons the New School for Design (2014).  

The Cushing/Whitney Medical Library is pleased to announce the completion of a grant funded to catalog 2,600 glass plate negatives from the Cushing Brain Tumor Registry.  The grant proposal, "Rethinking Early Neurosurgery: The Harvey Cushing Collection," was funded through a National Network of Libraries of Medicine-New England Region Knowledge/Data Management Award.  From mid-February through April 30th 2017,  a team of graduate and undergraduate students carefully inputted information on over 3,000 glass plate negatives into the Cushing Center database, exceeding the estimated amount in the grant. The negatives depict Dr. Harvey Cushing's patients, including histology.  Harvey Cushing, the pioneer and father of neurosurgery, was born on April 8, 1869 in Cleveland, Ohio. He graduated from Yale University in 1891, studied medicine at Harvard Medical School and received his medical degree in 1895. In 1896, he moved to Johns Hopkins Hospital where he trained to become a surgeon under the watchful eye of William S. Halstead, the father of American surgery. By 1899 Cushing became interested in surgery of the nervous system and began his career in neurosurgery. During his tenure at Johns Hopkins, there were countless discoveries in the field of neuroscience. In 1913, Cushing relocated to Harvard as the surgeon-in-chief at the new Peter Bent Brigham Hospital. Cushing continued to operate on several hundred patients a year with remarkable results.  In addition he was relentless in his recording of patient histories and continued his careful attention to the details and documentation of each surgery. In 1932 Harvey Cushing retired and in 1933 he agreed to join the staff at Yale University, his alma mater, as the Sterling Professor of Medicine in Neurology.  Cushing died in 1939. The negatives are undergoing rehousing and digitization, and will be made available for research through the Cushing Center database, which brings multiple parts of Harvey Cushing's work together in one place.  The database, still in development, will allow researchers to explore Cushing's medical work and patients.  Please contact Terry Dagradi, Cushing Center Coordinator, for details.  

 We have a secret!  Blog post on an item in the Books of Secrets exhibit, by student curator Jarrell Ng          Something that has both puzzled and fascinated me throughout this course is how the professors of secrets and their books became so authoritative even though many of their recipes were fantastical, and probably never worked. The charlatans especially - as depicted in Jan van de Velde’s print “The Quack: Populus vult decipi” (1603-1641) - were blatant in their fraudulence, performing songs, comedy and cheap carnival tricks to attract crowds, “appropria[ting] recipes from earlier books of secrets”[1], and of course fabricating secrets of their own. How could people have been so enthralled by such falsities, and why was such a market of lies so sustainable?            A common narrative advanced is that the theatricality of their displays - “the mountebanks put on a slapstick comedy, using the characters, devices and gigs of what would later be called the commedia dell’arte”[2] - made the ciarlatania beloved source of entertainment for European publics. Sure, this may account for their popularity, but it fails to explain why people took the further step of actually spending moneyto purchase their phony remedies. Van de Velde’s print seems to acknowledge this; it de-emphasizes the theatricality of the charlatan’s display - he stands back with his arms on his waist, allowing his nostrums to speak for themselves - subtly hinting at the possibility that people were actually drawn to the mountebank’s secrets themselves, and not just beguiled by his diversions.            Perhaps then, those who purchased these false secrets were simply gullible; naive or desperate enough to be convinced of their authenticity. Yet, given the farcical methods that charlatans used to ‘prove’ their remedies, to merely conclude that all their customers were foolish seems unsatisfying. Even the professors of secrets, who made a more deliberate effort to establish legitimacy than the ciaralatani- and were therefore less obviously unreliable - should, conceivably, have lost their credibility once people tested out the recipes in their books and discovered that many were ineffective. Thus, unless one believes that European publics at the time were truly that half-witted, gullibility offers a painfully inadequate explanation for why commercialized secrets sustained such popularity; as we know, no less than 104 editions of Alessio Piemontese’s work were published from 1555 to 1699.            Van de Velde’s simple yet sophisticated proposition however, that people want to be deceived (populus vult decipi),is very compelling. As we know, the invention of print did not result in the universalspread of knowledge, or a complete shift away from esotericism. Many constituencies still jealously guarded their secrets from ‘vulgar’, common folk - the Church for instance fought to maintain control of occult forces, while alchemists used decknamenand allegory to obscure the truth of their ‘divine revelations’. Thus, when the professors of secrets published their discoveries in step-by-step recipes within inexpensive books, and the charlatans sold magical remedies in the piazza at affordable prices, they gave the masses a sense of empowerment that went above and beyond the actual utility of the secrets traded. The effectiveness of the recipes or potions was ultimately of little consequence, because what customers in the marketplace were searching for were perhaps not pharmaceutical, alchemical or agricultural recipes per se, but the delightful delusion that it was within their reach to manipulate Nature and control the world around them. The spread of cheap, tradable secrets took power away from traditional authorities such as the Church, and gave those deemed unworthy of such higher pursuits the opportunity to partake in the fashionable hunt for the secrets of nature - the ‘swines’ now had access to the ‘pearls’, and the powerful symbolism of this transition made the question of the pearls’ authenticity largely inconsequential.            There is something thoroughly romantic about this narrative - certainly much more romantic than the suggestion that people were simply too stupid to realize they were being deceived - and it is perhaps the same romanticism that drives our enduring obsession with the books of secrets today.[1]Eamon, W. (1994). Science and the Secrets of Nature: Books of Secrets in Medieval and Early Modern Culture. Princeton University Press. p.243.[2]Ibid., p.238.

The Medical Historical Library’s digital collection includes School of Medicine photographs, portraits of 16th Century anatomist Andreas Vesalius, Harvey Cushing, and others, medical and surgical instruments, prints, posters, and drawings, and much more!  Recently, thousands of medical works from the 19th and early 20th centuries have been added to the Medical Heritage Library, an online resource of free and open historical resources in medicine.  This exhibit, on view in the Medical Library Rotunda, Hallway, and Foyer, showcases a selection from the thousands of items currently available online, and describes the process of digitization, bringing medical history to users throughout the world with a few simple clicks.  On view April 11 to July 5, 2013

Robert A. Butcher, Co. H, 82nd Infantry, Pennsylvania Robert A. Butcher was 21 when he enlisted in H Company 82nd Infantry Pennsylvania. Before the war, he was living with his mother, father, brother and sister in Philadelphia. His head was struck by a sabre on April 6th 1865 at Burkes’ Station, Virginia and he suffered two major cuts across the top of his head. He was admitted to Harewood Hospital on April 16th and, although the wounds healed rapidly, he began complaining of severe headache and intolerance to light. His anterior head wound re-opened a month later and began discharging unhealthy pus. After the wound opened, his headache gradually subsided and the wounds healed again. Physicians discharged him on June 9th and listed him as “nearly well.” Robert moved through three different homes for disabled veterans over the course of the next sixty years until he died in 1933. The first was in Milwaukee, Wisconsin, the second was in Grant, Indiana, and the third was in Chesapeake, Virginia. He varied from being listed as an inmate to being listed as a mental patient. He is buried in Hampton National Cemetery. On view now, the Medical Historical Library explores Civil War medicine through the haunting photographs of wounded soldiers in an exhibit, "Portraits of Wounded Bodies: Photographs of Civil War Soldiers from Harewood Hospital, Washington, D.C., 1863-1866." Selections from a set of 93 photographic portraits, including Robert Butcher's, from Harewood Hospital, Washington D.C. are on display in the Rotunda of the Medical Library. In the foyer of Sterling Hall, the exhibit expands to include a larger discussion of Civil War medicine and surgery, including hospitals and nurses, using images and materials from the Medical Historical Library. On view until April 1st, 2013.  An online version of the Harewood Hospital photographs is available in the Digital Library.